Here are all the audiograms I have. A line in each horizontal area of the audiogram corresponds to the following categories of hearing loss. Apparently it is very unusual to have this type of extreme hearing fluctuations. I’d love to hear from anyone else who has anything remotely similar to this.
Happy New Year my lovelies! Wishing you all healing progress in 2018. Today I want to talk about Epstein Barr Virus (EBV) again. I know I’ve posted about it before but It’s coming up so frequently in my natural health practice and because there is a general lack of awareness about it, especially among those with hearing […]
Thank you for all your support. I really appreciate the messages of support. I’d like to update you that after 10 days of high dose oral steroids (Methylpredisolone) my hearing in my right ear returned. As you must have gathered from my last post, losing more hearing was SERIOUSLY STRESSFUL and really hit my world. […]
Last week I had the pleasure of meeting a beautiful, bright and brave woman who sadly, is going through what I went through. Her ears, eyes and balance are in crisis. Her experience takes me back to that desperate, time-critical search for information that all the normal channels such as GP’s and hospitals often fail […]
There is a terror that freezes you stone cold when you realize that your world and how you predominantly interact with it, could be taken away from you. And there is nothing you can do but watch it happen. It’s like watching a car crash in slow motion. Except in my case it looks like […]
I’ve tried to keep all my posts mildly upbeat, considering the circumstance. I don’t want to leave a trail of misery in my midst nor give those of you out there in my position any reason to lose hope. But I realise that in doing so I’m also putting a big smile on a tragic […]
So I’m sitting here at home on another summers evening. Keeping busy as usual. Not thinking of what I might have been doing had my life not fallen to pieces from this stroke of difficulty that fell upon me. Not thinking about Glastonbury or all the festivals that I might have danced at had my […]
Yesterday I had my first Vestibular Rehabilitation Training session – hallelujah. I was eager for this appointment as so many people have told me they started getting better once they started VRT exercises. I gave up waiting for the NHS because life is just too short to be waiting so long for these essential appointments. […]
My family wanted to take me out last weekend so I agreed to brave a restaurant to see them. I searched out a place that would be carpeted, spacious and quiet to lessen the impact of background noise on me. Luckily I chose well and the restaurant was quiet and empty. But even still it felt […]
I can’t tell you the relief I felt to finally get my appointment at University College London Neuro-otology Department. Despite all the effort of travelling into London on the underground with vertigo and new hearing aids, it was all worth it because finally I was being seen by people who knew what they were doing and […]
By the end of the next week I just couldn’t cope without a hearing aid and decided it wasn’t an option to wait a minute longer for the NHS to provide me one. Over the last few weeks I’d gone for free consultations with a few private hearing aid centres in my area and had […]
By now I had got myself a Sonido Listener to get by in the world. This is a handheld electronic device which amplifies sound. It has an inbuilt microphone at one end which you point at people to make them feel important, and a headphone connection the other end which you hear them through. Whilst […]
I don’t know how to describe the feelings you have as you begin to notice all the ways in which you can’t hear; all the ways in which you’re now excluded from life which is lived interdependently with others. It’s like permanently being the one who didn’t get the joke whilst everyone else is laughing. […]
This week I found out that any sudden, noticeable reduction in hearing should be treated urgently as a medical emergency. It should be treated with the same importance that sudden blindness would be. So how come this is not the case in the UK’s NHS? In order to have a reasonable chance of saving someones hearing, […]
For the next few days I carried on laying horizontal . I slept a lot, researched a lot and found innovative ways of functioning without moving my head from the pillow. Those days that I had to make a bathroom visit, were traumatic because I’d get myself there with my boyfriends help, but then get […]
On Fri Feb 13th 2015, exactly 3 months ago, I was busy finishing off things at work and eagerly looking forward to spending Valentines weekend with my boyfriend. I was feeling a bit tired and run down and so we had decided to try and arrange a last minute spa getaway as a relaxing and […]
This is my very first forum post ever! I’m glad I finally got round to doing this and getting my head round WordPress. I’ve been recovering (or not) from bilateral (bloody unlucky) Labyrinthitus for 3 months now. I’ve learnt so much whilst travelling the tedious, process-driven, time-consuming NHS path and I want to share this […]