
Justin (46) Oscillopsia, Vestibular Neuritis, 2017
Hello to my bilateral oscillopsia friends! What started 6 months ago as a fever, turned to a cold, to a sinus infection, to an ear infection, to some hearing loss (1 ear only), and left me with permanent inner ear nerve damage and the HELL we all live in called “Oscillopsia”. Also, I have no […]

Jeff (age 43) Bilateral Vestibulopathy, 2012 Oregon
One night In late April 2012 I awoke about 3 or 4am with the worst headache I’ve ever had. I couldn’t sleep, so got up and waited until the doctors office opened and got there as soon as it opened at 11am which seemed like an eternity. The doctor said I had an ear infection […]
Sue (age 60) Labyrinthitus, 2014, E. Sussex
In January 2014 I was heading for a shopping trip with my daughter in her car. It was a normal day and we were chatting away. However, in a second things became very different. Completely out of the blue I became dizzy. This is a bit of an understatement because it was more like being […]
Share your experience with labyrinthitus, hearing loss or vestibular issues…
I’d like to open up a space on this blog for other people to share their experience with vestibular issues, labyrinthitus and hearing loss. It can be so isolating as the people around us don’t understand what we are seeing, feeling and hearing. Personally I so appreciate connecting with others who have had similar experiences and […]