Last week I had the pleasure of meeting a beautiful, bright and brave woman who sadly, is going through what I went through. Her ears, eyes and balance are in crisis. Her experience takes me back to that desperate, time-critical search for information that all the normal channels such as GP’s and hospitals often fail […]
There is a terror that freezes you stone cold when you realize that your world and how you predominantly interact with it, could be taken away from you. And there is nothing you can do but watch it happen. It’s like watching a car crash in slow motion. Except in my case it looks like […]
By the end of the next week I just couldn’t cope without a hearing aid and decided it wasn’t an option to wait a minute longer for the NHS to provide me one. Over the last few weeks I’d gone for free consultations with a few private hearing aid centres in my area and had […]
I don’t know how to describe the feelings you have as you begin to notice all the ways in which you can’t hear; all the ways in which you’re now excluded from life which is lived interdependently with others. It’s like permanently being the one who didn’t get the joke whilst everyone else is laughing. […]
This week I found out that any sudden, noticeable reduction in hearing should be treated urgently as a medical emergency. It should be treated with the same importance that sudden blindness would be. So how come this is not the case in the UK’s NHS? In order to have a reasonable chance of saving someones hearing, […]
For the next few days I carried on laying horizontal . I slept a lot, researched a lot and found innovative ways of functioning without moving my head from the pillow. Those days that I had to make a bathroom visit, were traumatic because I’d get myself there with my boyfriends help, but then get […]
This is my very first forum post ever! I’m glad I finally got round to doing this and getting my head round WordPress. I’ve been recovering (or not) from bilateral (bloody unlucky) Labyrinthitus for 3 months now. I’ve learnt so much whilst travelling the tedious, process-driven, time-consuming NHS path and I want to share this […]