This is what the world looks like through my eyes, unless I am sitting very still. Thankfully its no longer a spin (like in the acute stage), but its still very disorientating. Its horrible to not see in focus around you.
I can’t tell you the relief I felt to finally get my appointment at University College London Neuro-otology Department. Despite all the effort of travelling into London on the underground with vertigo and new hearing aids, it was all worth it because finally I was being seen by people who knew what they were doing and […]
By the end of the next week I just couldn’t cope without a hearing aid and decided it wasn’t an option to wait a minute longer for the NHS to provide me one. Over the last few weeks I’d gone for free consultations with a few private hearing aid centres in my area and had […]
By now I had got myself a Sonido Listener to get by in the world. This is a handheld electronic device which amplifies sound. It has an inbuilt microphone at one end which you point at people to make them feel important, and a headphone connection the other end which you hear them through. Whilst […]
I don’t know how to describe the feelings you have as you begin to notice all the ways in which you can’t hear; all the ways in which you’re now excluded from life which is lived interdependently with others. It’s like permanently being the one who didn’t get the joke whilst everyone else is laughing. […]
This week I found out that any sudden, noticeable reduction in hearing should be treated urgently as a medical emergency. It should be treated with the same importance that sudden blindness would be. So how come this is not the case in the UK’s NHS? In order to have a reasonable chance of saving someones hearing, […]
The second bout of Labs was so horrible I didn’t care as much about being medicine-free and I pretty much begged for the anti-dizzy pills. Only I couldn’t hold them down this time. I was desperate for help but since my GP had told me there was nothing anyone could do, I didn’t think there would […]
For the next few days I carried on laying horizontal . I slept a lot, researched a lot and found innovative ways of functioning without moving my head from the pillow. Those days that I had to make a bathroom visit, were traumatic because I’d get myself there with my boyfriends help, but then get […]
On Fri Feb 13th 2015, exactly 3 months ago, I was busy finishing off things at work and eagerly looking forward to spending Valentines weekend with my boyfriend. I was feeling a bit tired and run down and so we had decided to try and arrange a last minute spa getaway as a relaxing and […]
This is my very first forum post ever! I’m glad I finally got round to doing this and getting my head round WordPress. I’ve been recovering (or not) from bilateral (bloody unlucky) Labyrinthitus for 3 months now. I’ve learnt so much whilst travelling the tedious, process-driven, time-consuming NHS path and I want to share this […]