Week 16 – My very first physio (VRT) and steroid shot
Yesterday I had my first Vestibular Rehabilitation Training session – hallelujah. I was eager for this appointment as so many people have told me they started getting better once they started VRT exercises. I gave up waiting for the NHS because life is just too short to be waiting so long for these essential appointments. […]
Week 15 – My miserable week
My family wanted to take me out last weekend so I agreed to brave a restaurant to see them. I searched out a place that would be carpeted, spacious and quiet to lessen the impact of background noise on me. Luckily I chose well and the restaurant was quiet and empty. But even still it felt […]
Oscillopsia and tinnitus – the world through my dizzy eyes and noisy ears
This is what the world looks like through my eyes, unless I am sitting very still. Thankfully its no longer a spin (like in the acute stage), but its still very disorientating. Its horrible to not see in focus around you.
Week 13 – Neuro-otologists – the specialists
I can’t tell you the relief I felt to finally get my appointment at University College London Neuro-otology Department. Despite all the effort of travelling into London on the underground with vertigo and new hearing aids, it was all worth it because finally I was being seen by people who knew what they were doing and […]
Week 11 – My first hearing aids and the ENT gets fired
By the end of the next week I just couldn’t cope without a hearing aid and decided it wasn’t an option to wait a minute longer for the NHS to provide me one. Over the last few weeks I’d gone for free consultations with a few private hearing aid centres in my area and had […]
Week 9-10 – Brain scans, sudden hearing loss and the NHS
By now I had got myself a Sonido Listener to get by in the world. This is a handheld electronic device which amplifies sound. It has an inbuilt microphone at one end which you point at people to make them feel important, and a headphone connection the other end which you hear them through. Whilst […]
Month 2 – The Dizzy NHS
I don’t know how to describe the feelings you have as you begin to notice all the ways in which you can’t hear; all the ways in which you’re now excluded from life which is lived interdependently with others. It’s like permanently being the one who didn’t get the joke whilst everyone else is laughing. […]
Week 4 – Sudden Hearing Loss
This week I found out that any sudden, noticeable reduction in hearing should be treated urgently as a medical emergency. It should be treated with the same importance that sudden blindness would be. So how come this is not the case in the UK’s NHS? In order to have a reasonable chance of saving someones hearing, […]
Week 3 – Dizzy gets ditched
The second bout of Labs was so horrible I didn’t care as much about being medicine-free and I pretty much begged for the anti-dizzy pills. Only I couldn’t hold them down this time. I was desperate for help but since my GP had told me there was nothing anyone could do, I didn’t think there would […]
Week 2 – Labyrinthitus Take 2
For the next few days I carried on laying horizontal . I slept a lot, researched a lot and found innovative ways of functioning without moving my head from the pillow. Those days that I had to make a bathroom visit, were traumatic because I’d get myself there with my boyfriends help, but then get […]
April 15, 2019 @ 8:24 pm
Hello to you from Germany,
I am most impressed by your stringent approach and trust you will finally succeed and you regain your hearing ability.
I am also on the MM protocol since February. I suffer from Tinnitus for the last 18 years.
Maybe it does the trick…
Eager to hearing from you once you get better.
All the very best.
Michael
April 18, 2019 @ 8:23 pm
Hi Michael, Thanks for your message. I have found that when I stick to the protocol usually my hearing stays stable. It’s when i go off track that I have dramatic fluctuations. I haven’t written in a while but i will be back! 🙂
May 24, 2019 @ 9:20 pm
Hello Candice,
I have only just found your blog, well stumbled across it really. The lovely lady in our local health shop (I live in Northland, New Zealand) mentioned drinking celery juice for my raft of problems (so similar to yours not funny). In my searches I came across your incredible story and journey. I am still reading it and about to launch into the protocol outlined. I hope and pray you are finding healing in your life and look forward to hearing (sorry no pun, I now wear two hearing aids for a “reason unknown “ hearing loss) more of your journey. Cheers. Ursula
May 24, 2019 @ 10:31 pm
Hi Ursula
Wow so you also lost hearing suddenly. Glad my blog is making it all round the world! :£ ok so I recommend reading medical medium or look online there’s tonnes of free information. I can give more in depth support my other website is candiceluper.com
Feel free to message me privately
Candice x